I just finished my application to serve on the Patient Advisory Council for Transplantation (PACT) at Carolinas Medical Center. To quote the invitation to apply: PACT allows patients and families to offer leadership and input on policies, programs, and practices dealing with care and services for the patients and family members we serve. The importance […]
It’s set
On Tuesday at 6:00 PM, I will meet my recipient. There may be media there as well. My coordinator let me know that he is nervous about meeting, but really wants to. I told her I am the same way and that I would probably be pretty emotional when I do. The current plan is […]
Major updates
First, I finally heard back from y coordinator this afternoon. As of right now, she is working on scheduling our meeting my recipient next Tuesday (10/29) evening. The second major update is that she asked this: What are your thoughts on the hospital’s PR dept and maybe a news station doing a story about your […]
Finally
No, I didn’t hear back yet. I finally broke down and sent an email to my coordinator asking for an update. I did remind her that I had left a message several weeks ago. However, I got an automated out of office reply saying that she was out yesterday, but that she would be back […]
Over three weeks
It’s now been over three weeks since I left a message for my coordinator. I’m still waiting. I’m tempted to send an email, but I’m going to hold out a little longer.
Two weeks, still waiting
This past Friday (October 11) marked two weeks since I called and left a message with my coordinator asking her to call me. Still nothing, still waiting.
Four months
Today marks four months since my donation. I’m still feeling great, even in spite of my issues with my Grand Canyon hike. One thing is bugging me though. I spoke to my transplant coordinator on August 26th about several items. One was my desire to be very involved in assisting others and being an advocate […]
Almost there
I’m writing this post from the plane on my way to Arizona. This is the weekend of my big hike. My penultimate quest for my recovery is to be able to hike across the Grand Canyon. Based on my training hikes, I’m feeling good about this trip. This is my first trip back to the […]
Catching up
It’s definitely been a while since I posted anything, but I really didn’t have much to post recently. I successfully completed the training hike I mentioned in my previous post. Though I was really wiped out by the end of it. Still, it felt great to be out and to have accomplished that. It made […]
Nine weeks
Today marks nine weeks post surgery. Not much new to report. I went hiking again this past Sunday as part of our training for the Grand Canyon hike in September. We did Mt. Mitchell which is the highest point in North Carolina. To simulate the Grand Canyon experience, we started at the peak (~6600 feet) […]